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Meet the Patient Advocate Panelists in Our Upcoming Webinar: Rare Disease Day 2023 Wrapped, What You Need to Take Away

Conversations in Drug Development Trends

Rare Disease Day on February 28th is a chance for rare disease communities to come together as one and join in conversation with stakeholders searching for treatments, raising money to support research, and changing the way healthcare and governments interact with patients. In my case, my daughter Iris has GM1 gangliosidosis.

Disease 52
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Tips for Parents of Kids With Diabetes

The Pharma Data

More than 205,000 kids and teens have the disease, and cases are rising. children and teens with type 2 diabetes increased by 30% between 2001 and 2009, with cases growing among youth aged 10 and older. A child can see a doctor, diabetes educator, dietitian and psychologist. WEDNESDAY, Jan. Here’s what parents should know.

Doctors 52
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Genomics/Biobanks/Cohort Studies

Broad Institute

in Physics from Massachusetts Institute of Technology in 2009. The Sabatini Lab focuses on the development and regulation of synapses in the brain and the relationship of these processes to behavior and disease. He has supervised 52 PhD students and received the Maud Kuistila award for excellence in doctoral training.

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AHA News: Few Clinical Studies Examine High Blood Pressure Treatments for Black Americans

The Pharma Data

based clinical trials investigating interventions for high blood pressure between 2009-2018, just 52 were exclusively in Black people. While the numbers grew over that decade – from 3.9% (3 of 77 trials) in 2009 to 6.2% (9 of 146) in 2018 – the increase was not enough to be statistically significant.

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Marquis Who’s Who Honors James D. McChesney, PhD, with Inclusion in Who’s Who in the World

The Pharma Data

Inspired by a lifelong passion for nature and a fascination with the potential to address disease using naturally derived compounds, he earned a Bachelor of Science in chemical technology at Iowa State University of Science and Technology in 1961. In 2009, he established Ironstone Separations Inc.,

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How Lume Whole Body Deodorant Was Inspired by a Genetic Disease

PLOS: DNA Science

Among the barrage of drug ads for cancer, diabetes, weight loss and more are those for Lume , a “doctor-developed whole body deodorant.” A Compelling Need I was delighted to discover that the inspiration for Lume is a rare, recessive genetic disease, trimethylaminuria (TMAU), aka “fish odor syndrome.”

Disease 76
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Raising Welfare for Lab Rodents

Codon

Of course, AA and P-line rats are not the only research animals bred for the study of disease. By doing so, researchers study pain, genetic disorders, the effect of drugs, and disease pathways in mammals that, while genetically similar to us, are not human beings. They are bred, incised, injected, and deprived.

Research 113