Mother of 4-Year-Old Living With KAND, One of the Rarest Disorders in the World, Advocates to Find a Cure
KIF1A
APRIL 27, 2024
“We had her one-year checkup, and the doctor was concerned about her lack of awareness to the environment around her. It was then that doctors determined that Emma has KIF1A Associated Neurological Disorder, or KAND. I immediately started researching where in Canada has the best resources for Emma. Amanda says. “We
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