KIF1A
APRIL 27, 2024
April 28th is KIF1A Day! Join us in celebration! Topics include: Big accomplishments Treatment Accelerator Program (TAP) Fundraiser Fun KAND warrior dance video Donate to our TAP Fundraiser in honor of KIF1A Day. ~ Donate Today ~ $3,500 of $70,000 raised so far! ASCEND Enrollment Lagging We need ALL KAND warriors enrolled ASCEND is our Natural History Study.
Drug Patent Watch
APRIL 27, 2024
This chart shows the pharmaceutical companies with the most spray dosed drugs. For a different perspective, see the most popular dosage types.
KIF1A
APRIL 27, 2024
Link to Inside Edition 10 minute interview with Amanda and Emma. By ANDREA SWINDALL, First Published: 8:34 AM PDT, April 6, 2024 KIF1A Associated Neurological Disorder is a rare severe neurodegenerative disease caused by mutations in the KIF1A gene, Amanda Burrett says. Only about 550 known families have been affected. Amanda Burritt’s daughter Emma is living with one of the rarest conditions in the world.
Speaker: Simran Kaur, Founder & CEO at Tattva Health Inc.
The healthcare landscape is being revolutionized by AI and cutting-edge digital technologies, reshaping how patients receive care and interact with providers. In this webinar led by Simran Kaur, we will explore how AI-driven solutions are enhancing patient communication, improving care quality, and empowering preventive and predictive medicine. You'll also learn how AI is streamlining healthcare processes, helping providers offer more efficient, personalized care and enabling faster, data-driven
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